Did You Know...
According to the National Institute of Health (NIH), Propionic Acidemia (PA) is a rare inherited condition in which the body can’t breakdown certain parts of proteins and fats. This leads to a build-up of toxic substances causing a metabolic crises. Symptoms of this kind of crisis include poor feeding, vomiting, weak muscle tone, and lack of energy. This usually occurs within the first few days after birth. Without early diagnosis and treatment, these symptoms may lead to more serious medical problems, including heart abnormalities, seizures, intellectual disability, coma, and possibly death.
- About 1/105,000-1/240,000 babies are born with PA in the United States.
- Currently, there is no cure for PA. Treatment is focused on managing the symptoms and providing the best quality of life for those who have it.
What We Do
The City Impact intends to change the face of Propionic Acidemia by acting as a catalyst in the advancement of PA research.
How We Do It
We work closely with the National Institute of Health (NIH), the nation’s medical research agency, as they continue to discover new ways to improve and save the lives of PA patients. This lies at the heart of our mission. As NIH builds out new cutting edge research for PA, our goal is to help fund that research so that the face of PA is changed forever.
The City Impact seeks out opportunities for donors and investors to give financially and create a positive future for PA patients. Community support is vital for the advancement of research and discovering a cure for Propionic Acidemia.
To discover a cure for PA within the next 5 years, giving every PA patient a fighting chance at
living a long, quality life.
This Is Us
On May 25th, 2017, many lives were changed forever. Aiden Andrew and his twin sister, Ava Lynn, were born into this world. Their mother, Rachelle, had been longing for this moment to adopt the children she had been praying for, for so long. Flying from Ohio to Kansas, Rachelle got on a plane the moment she got the call that the twins were being born. After their birth, Aiden began showing signs of a metabolic crisis and was care flighted to Kansas City Children's Hospital in Missouri. That is when it was discovered that Aiden had Propionic Acidemia.
Ever since Rachelle brought Aiden home, she has worked tirelessly to keep him healthy. He requires a daily formula and special medication that he takes through his feeding tube. Rachelle and Aiden are working closely with NIH doctors, Dr. Charles Venditti and Dr. Oleg Shchelochkov, as they pursue research to find a cure for PA.
Rachelle's cousin, Whitney, came to her with the idea to create a nonprofit that shares Aiden's story and raises funds to help support NIH's current research on PA. NIH is making incredible progress with PA and while their hearts' deeply desire a cure for Aiden, they are also passionate about every child with PA getting the help they need.
It is the mission of NIH to turn discovery into health and it is one we want to be a part of.
“Family and community support is vital in the advancement of research for Propionic Acidemia.”
- Dr. Charles Venditti, MD, PhD
NIH can only continue their research of PA when they receive grants,
which are very competitive!
The best chance of quick progress in finding a cure for PA is by the financial support of friends, family and community.
We would appreciate your partnership!
You can donate online by clicking the link below.
You can send a check to:
The City Impact
1867 Delta Ave
Xenia, Ohio 45385
*** Every financial gift is tax deductible ***